Only 15 to 25 percent of individuals with Huntington's Disease are cared for in an HD subspecialty care center, such as an HSG-credentialed research site. That means that the vast majority of this complex care management is occurring in settings where coordinated care and subspecialty expertise may be difficult to find. To help healthcare providers better navigate caring for families with HD, HSG has created videos to give providers an introduction.
Caregiver's Corner is designed to provide information, resources, and support for caregivers so they are better able to face the daily challenges of living with HD.
HDSA hosts HD researcher to present their work via webinars, in plain language.